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Part of the Global Healthy Living Foundation
The more you know, the less you'll owe.
Meet our Team
Real-time sales flip-books are more than one man can handle, no matter how many digits of Pi I can remember. That’s three, by the way. That’s why my team is teeming with talent:
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Oli Gardner
Honorable mention for immortalizing me in the annals of landing page templates.
John Smith
John and his unnervingly generic name have been adding value to my team since 1998.
Jane Smith
Jane is … wait, Jane Smith? Are you guys siblings? Are your parents the most boring people on Earth?
Joe Smith
OK, let’s get real. I want copies of all of your birth certificates on my desk by EOD.
A Very Small Hedgehog
Questionable work ethic, but has made immeasurably positive contributions to office morale.
The Dark Spirits
Don’t ask them questions.
Choose what best describes you:
Find out what questions to ask about your employer-sponsored health insurance.
Find your state’s open enrollment period, how to sign up for a marketplace plan, and more.
If you are disabled or age 65 and up, you qualify for Medicare. Learn more about Medicare, when to enroll, what’s covered, and more.
There are 5 important things to consider when choosing a health insurance plan that is right for you, especially if you are living with a chronic illness.
A CHRONIC ILLNESS PATIENT'S GUIDE TO CORONAVIRUS
We’ve been hearing many questions and concerns from our patient community about the continued spread of coronavirus across the U.S. and around the world. Public health experts — and the many rheumatologists CreakyJoints has spoken with who treat patients who are immune-compromised — do not want patients to panic. But you do need to be informed and take steps to protect your health.
We put together this comprehensive resource specifically for people with chronic illness and are sharing perspectives of patients who have serious concerns about the outbreak.
Expert Advice
Stopping Immunosuppressant Medication During an Infection? Sick-Day Planning for the Coronavirus Outbreak
Learn more about guidelines for when to stop vs. remain on immunosuppressing medications when you get an infection, including coronavirus
Coronavirus Prevention and Precaution: Commonsense Advice From the CreakyJoints Community
Learn more about what CreakyJoints members with chronic illness are doing to stay safe during the coronavirus outbreak.
Learn How to Properly Wash Your Hands — from World Health Organization (WHO)
Wash your hands often with soap and water for at least 20 seconds, especially after going to the bathroom; before eating; and after blowing your nose, coughing, or sneezing. If soap and water are not readily available, use an alcohol-based hand sanitizer with at least 60% alcohol.
Stay Up to Date On Any New Recommendations From the U.S. Centers for Disease Control and Prevention (CDC)
Make sure to check out the CDC's website for official recommendations and guidance on how to protect yourself and others from coronavirus.
About CreakyJoints
CreakyJoints is a digital community for millions of arthritis patients and caregivers worldwide who seek education, support, advocacy, and patient-centered research. We represent patients through our popular social media channels, our website www.CreakyJoints.org, and the 50-State Network, which includes more than 1,500 trained volunteer patient activists.
As part of the Global Healthy Living Foundation, CreakyJoints also has a patient-reported outcomes registry called ArthritisPower® with nearly 30,000 consented arthritis patients who track their disease while volunteering to participate in longitudinal and observational research. CreakyJoints also publishes the popular “Raising the Voice of Patients” series, which are downloadable patient-centered navigational tools for managing chronic illness. For more information and to become a member (for free), visit www.CreakyJoints.org. To participate in our patient-centered research program, visit www.ArthritisPower.org.
Join Our Patient Support Program Now
News about the coronavirus is rapidly changing, and experts are quickly evolving their guidelines for at-risk patients. Don't miss out on this information and the support you can receive from CreakyJoints and Global Healthy Living Foundation (GHLF). Join oue program today.
By submitting this form, you give consent to GHLF and CreakyJoints to send you useful content via email. You can unsubscribe at any time by clicking "unsubscribe" at the bottom of our emails. We will never sell your data and we promise to keep it safe and secure. See our Privacy Policy.
Coronavirus Made Me Cancel My Trip to Italy: A Rheumatoid Arthritis Patient’s Conundrum
Learn more about why a patient with rheumatoid arthritis cancelled her trip to Italy because of fears of coronavirus and being immunocompromised.
Coronavirus: 10 Things Chronic Illness Patients *Need* Others to Know
Learn more about what people with underlying health conditions and who are immune-compromised want others to know about their coronavirus concerns.
‘I Have Many Reasons to Be Worried About the Coronavirus But No Cares’: A Chronic Illness Patient Speaks Out
Learn more about why Jennifer Walker, a patient living with chronic illnesses, including rheumatoid arthritis and axial spondyloarthritis, worries about coronavirus but feels ignored.
I Still Have Complications from the 2009 Swine Flu, So Understand Why Coronavirus Is Worrying People with ‘Underlying Health Conditions’
Learn more about what a chronic illness patient with swine flu complications wants the public to understand about coronavirus and underlying health issues.
Infographic: The Proper Way to Wash Your Hands to Help Prevent Coronavirus Spread
Here are the steps, according to the CDC, to wash your hands properly to avoid spreading infection like the coronavirus.
‘The Cripples Will Save You’: A Critical Coronavirus Message from a Disability Activist
Learn more about why disabled patients are being left out of the coronavirus public health conversation and what we can do to change it.
Preventing Coronavirus Loneliness from Social Isolation: Advice for Chronic Illness Patients
Learn more about how immunocompromised patients avoiding crowds and public places during the coronavirus outbreak can prevent feelings of loneliness.
Infographic for Coronavirus Prevention: Chronic Illness Patients, Make Sure Your Loved Ones See This
Learn more about coronavirus prevention tactics people with chronic illness should be following and making sure loved ones and caregivers follow too.
Coronavirus Anxiety: Key Advice for Chronic Illness Patients from Health Psychologists
Read advice from mental health experts to people with chronic illnesses who are worried about the coronavirus outbreak.
Coronavirus Questions from Immunocompromised Patients (and the Best Expert Answers We Have Right Now)
Get expert answers from rheumatologists about how COVID-19 and the coronavirus pandemic are affecting immunocompromised patients with chronic illness.
Hey, Flippant People on Social Media Making Light of the Coronavirus: Can You Please Listen to Someone with a Suppressed Immune System?
Learn more about why an immunocompromised patient wants others who are making light of the coronavirus to understand the seriousness of the outbreak.
The contents of this website are for informational purposes only and do not constitute medical advice. CreakyJoints.org is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of a physician or other qualified health provider with any questions you may have regarding a medical condition.
Here’s What It’s Like to Be an Immunocompromised Rheumatoid Arthritis Patient in the Time of Coronavirus
Learn what it’s like to have rheumatoid arthritis and be immunocompromised during the global coronavirus outbreak.
Coronavirus Facts: What You Need to Know If You Have Chronic Illness or Are Immune-Compromised
CreakyJoints spoke with multiple rheumatologists and infectious disease experts to try to track down answers and advice that are as specific to this community as possible. Here’s what we have learned so far.
Coronavirus Prevention
Patient Perspectives
Mental Health
Additional Resources
‘Stay Home as Much as Possible’: The New CDC Advice for Those at High Risk of Coronavirus Complications
Learn more about CDC recommendations to stay home and what social distancing means for people with chronic illness and weakened immune systems.
Coronavirus Calm vs. Crazy: This Video Parody Perfectly Shows How Prevention Is Different with a Chronic Illness
Learn more about how preventing coronavirus with handwashing and other measures feels different when you are immunocompromised.
Immunosuppressed and Spoonie Patients: Now’s the Time to Make Your Coronavirus Pandemic Plan
Learn more about what people who are immunocompromised and who have chronic illnesses should be doing to plan for the coronavirus pandemic.
‘If You’re Healthy, Your Job Right Now Is to Save the World’: Another Coronavirus Message from a Disability Activist
Learn more from a disability activist why it’s important for healthy people to prevent coronavirus spread in order to save people with chronic illness.
6 Facts You Can Share When Someone Dismisses Coronavirus as ‘Just Like the Flu’
Learn more about why coronavirus, or COVID-19, is different than the flu because there is no vaccine, herd immunity, or treatment, plus other reasons.
Coronavirus Boredom When You’re Cooped Up with Chronic Illness: 25+ Ideas for Spending Your Time
Get ideas from CreakyJoints members with chronic illnesses on how to get through long days at home because of social distancing.